Saturday, October 16, 2010

This is my bestie Melissa, her hubby Brant and their sweet Ginny Girl.  Mel & Brant started having concerns about Ginny's development soon after she was born.  They did therapies, saw every type of doctor imaginable, and ran seemingly every test available for over a year.  Finally in May of this year, at 21 months old, she got a diagnosis.  Peroxisomal Biogenesis Disorder, (PBD).  It is an extremely rare, recessive genetic disorder.  Statistically, the prognosis for PBD is not good.  Melissa attended services for a 4 year old just this week.  HOWEVER, being the certifiable SuperMom that she is, Melissa is determined to make some good come out of all this.  She and one other mom have started the Global Foundation for Peroxisomal Disorders.  GFPD is a 501c3 non-profit that will be an information and support source for families and provide money for much needed research.  They hope to hold their first annual conference next summer so all families can get information from the ONE expert in the country. To support Ginny and GFPD, Melissa is running the Tulsa Run on October 30 and I have committed to running with her.  Neither of us have been runners in the past, so we are both working very hard to RUN the 5K without walking.  I just committed to this on Tuesday so I'm really pushing myself to be ready in time - but no harder than Ginny has to push herself for every tiny step.  In honor of Ginny, other children with PBD, and those who already have their angel wings, please search your heart, pray about it, and consider making a contribution to GFPD.  All donations are tax deductable and can be made by mailing a check to: 

c/o Melissa Gamble
5918 S. Marion Pl.
Tulsa, OK 74135



All of us who love Ginny, or have every loved any child with PDB, thank you - so VERY, VERY much.

1 comment:

Lisa said...

Wow Courtney! So proud of you (and Mel of course)! See you there! :)